21 March 2015 – World Down syndrome Day

8th May 2015
The Minister of Culture Elizabeta Kancevska-Milevska and the British Ambassador, H.E. Charles Garrett

We celebrated the World Down syndrome day by organizing numerous activities, which were recognized and appreciated at the main event on the 18th March. Among the many activities were:

* 4th March – Bowling for the adults

* 9th March – Opening of the Bitola branch.
The families from Bitola requested a space and we were given a space as part of the daily care center which is in the building of the Institute for babies and children who are abandoned by their families. We have an ambitious plan to have regular events and activities and expect to be able to offer physical therapy, language therapy and creative workshops.

* 14th March – presentation in “Dramski Theater”. We had 30 minutes of interaction with the visitors, prior to the beginning of the theater play “Captain John Peoplefox”. We had a stand in the foyer with hand-made embroidery by Elizabeta Petkovska, 44-year old woman with Down syndrome, who creates the most amazing lace and jewellery. We decorated the space with the photos of the traveling Photo exhibition and were handing out brochures about Down Syndrome and the work we are doing. We were encouraging people to wear lots of socks on the 21st March and join us on our main event on the 18th March.

The same format of presentation and watching a theater play afterwards took place on the 25th March this year in the Macedonian National Theater. The theater play that we chose was  “The life of Molière”. This is the theater where our patron, Iskra Veterova, works.

After seeing how valuable these performances are to people with Down syndrome, the parents realize that these and similar events are necessary and should become regular practice. This, among other communicated observations, was a reason for the meeting with the Minister of Culture, who was very open to cooperation and suggested thinking of more regular inclusion within all of the cultural institutions throughout the country. We have had a very productive cooperation with most of the theaters so far, but it was good to remind the Minister that the people with Down syndrome should be considered not only as audience, but also when there are possibilities for employment, volunteering and enjoying the art and sites that are managed by this Ministry. There was a mutual willingness for increased and more systematic cooperation and we agreed that it is of utmost importance to observe the World Down Syndrome Day and raise the awareness of the general public, increase the access to this group of people and their families to art, music and literature.

* 17th March – Cooking with Adriana Alacki in Etno Selo from 10am to 14 pm, Etno Selo is just outside of Kumanovo (http://www.etnoselo.com.mk/). TWith the ladies from IWA we had a few hours of cooking and eating together. All of us, together with around 10 persons with DS cooked together with Adrijana Alachki (http://adrijanaalacki.mk/) and then we ate what we cooked. Our cooking was filmed and part of Adrijana’s famous TV show “Vkusot na tradicijata” on Alfa TV.

* 18th March – Film Festival, Celebration of 21 March and photo exhibition. The event was well attended and we are grateful that we could bring on the stage the Minister of Culture, Ms. Elizabeta Kancevska Milevska, the Rector of ESRA, Mr. Jordan Plevneš and the British Ambassador to Macedonia, H.E. Charles Garrett. They all talked about the value the person with Down syndrome bring to our societies and that the institutions are responsible to provide better services for them. They all announced various ways how they plan to assist our work and with that change the lives of the persons with Down syndrome in Macedonia.The event ended with showing the American documentary film “Dakota’s pride”.

More about all of our events celebrating 21 March this year could be found on: https://www.worlddownsyndromeday.org/macedonia

 

H.E. UK Ambassador Charles Garrett and Ida manton, Chairperson of Down syndrome Center

H.E. UK Ambassador Charles Garrett and Ida manton, Chairperson of Down syndrome Center

The Minister was surprised to see how capable and willing to participate in the work of the cultural institutions these people are

The Minister was surprised to see how capable and willing to participate in the work of the cultural institutions these people are

Lucia Manton with the Minister of Culture

 

 

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